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Transference: Applying Lessons Learned to Real Life
In this week’s episode, Mary shares her experience participating in a patient forum, hosted by the Hypertrophic Cardiomyopathy Association (HCMA) and the American College of Cardiology (ACC), while Alex speaks to how we can transfer the knowledge, information, and lessons learned from such experiences to real life and living every day with diseases and complex medical conditions.
Episode Highlights
Welcome back! [0:39]
HCMA/ACC Patient Forum [0:48]
Hypertrophic Cardiomyopathy (HCM) [1:09]
Hypertrophic Cardiomyopathy Association (HCMA) [2:12]
Effects of HCM on patients [3:05]
Sudden Death Event (SDE) [3:33]
Living in fear [4:34]
Shared decision-making [5:45]
Self-advocacy [7:40]
Specialties in medicine [8:58]
Mental health [11:15]
Pregnancy risks [11:48]
Autosomal dominant mutated gene [11:55]
Exercise and weight management [12:23]
Misunderstood [14:24]
Survivor’s guilt [14:48]
Hitting milestones [15:29]
Medical insurance [16:30]
Medicine is evolving [18:40]
ACC initiative [20:40]
Politics and medicine [21:10]
Kudos to HCMA and ACC [23:46]
New HCM drug (Mavacamten) [24:21]
Breathing and singing [26:50]
Positive outlook for the future of HCM [28:33]
Knowledge is power [30:26]
In the News! [30:46]
Transference [35:36]
Thanks for listening! [36:40]
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Links Mentioned in the Episode
4HCM
American College of Cargiology
Women's Cancer Research Foundation: HPV-Related Cancers on the Rise
Summary Keywords
Podcast, Spotify, Anchor, research, advocacy, advanced imaging, diagnosis, knowledge, women, fear, bias, social pressure, hypertrophic cardiomyopathy, mavacamten, patient forum, life lessons, transference, sudden death event, autosomal dominant, genetic testing