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Season 2 Episode 4: The Rest of the Story

Updated: Feb 1

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The Rest of the Story

This week Alex and Mary sit down to discuss some of their experiences that could have (and should have) been handled better by the medical community. Their intent is not to disparage those who work in the medical field, but rather to share these experiences and how they were resolved, hoping to be of some help to our listeners.


Episode Highlights


· The intent of this discussion [1:15]

· First realization of a need for advocacy [2:45]

· A mother’s reaction [5:45]

· A patient’s reaction [7:45]

· Lumbar puncture [9:30]

· Bias against overweight patients [10:35]

· Hypertrophic Cardiomyopathy [15:55]

· Requesting a consult [18:00]

· Implantable Cardiac Device (ICD) [19:40]

· Insurance [21:00]

· Personal references for doctors [25:40]

· Attention to detail [28:40]

· Empathy (34:10)

· More good than bad (36:20)


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Summary Keywords

Podcast, Spotify, Anchor, research, advocacy, pectus excavatum, UFHealth, Shands, advanced imaging, Pseudotumor Cerebri, Idiopathic, Intracranial Hypertension, lumbar puncture, cerebrospinal fluid, papilledema, physician bias, overweight, shunts, neurology, neurosurgery, Hypertrophic Cardiomyopathy, Osteoporosis, insurance approval, MRSA, vancomycin, diagnosis, women, health insurance, gynecology, health, womb stories, relationships, mother, daughter, cancer, ICD, Lynch Syndrome, genetic testing, empathy, CoVid-19


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